{"id":27,"date":"2019-02-18T05:53:45","date_gmt":"2019-02-18T05:53:45","guid":{"rendered":"http:\/\/www.cln2family.com\/hr-hr\/?page_id=27"},"modified":"2019-02-26T05:02:21","modified_gmt":"2019-02-26T05:02:21","slug":"connecting-with-community","status":"publish","type":"page","link":"https:\/\/www.cln2family.com\/hr-hr\/connecting-with-community\/","title":{"rendered":"How can I connect with others?"},"content":{"rendered":"[mk_page_section bg_image=”https:\/\/www.cln2family.com\/hr-hr\/wp-content\/uploads\/sites\/7\/2019\/02\/banner-bg-new.png” el_class=”main-Hbanner” sidebar=”sidebar-1″][vc_column width=”2\/3″ el_class=”inner-banner-left”][vc_single_image image=”21″ img_size=”full” el_class=”inner-banner_img”][mk_fancy_title tag_name=”h1″ color=”#ffffff” size=”38″ force_font_size=”true” font_weight=”bold” margin_bottom=”30″ font_family=”Source+Sans+Pro” font_type=”google”]Kako se mogu povezati s drugima?[\/mk_fancy_title][\/vc_column][vc_column width=”1\/3″ el_class=”header-callout”][\/vc_column][\/mk_page_section][mk_page_section el_class=”community_top” sidebar=”sidebar-1″][vc_column el_class=”community_heading”][vc_column_text]\r\n
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Pove\u017eite se sa sve ve\u0107om zajednicom za potporu oboljelim od CLN2 bolesti<\/h3>\r\n<\/div>\r\nNiste sami\u00a0–\u00a0postoje mnogi resursi podr\u0161ke za obitelji i njegovatelje djece oboljele od bolesti CLN2. Skrb o djetetu koje ima CLN2, mo\u017ee biti emocionalno i fizi\u010dki zahtjevna. Zbog toga pronalazak drugih roditelja i profesionalaca u cilju razgovora mo\u017ee olak\u0161ati no\u0161enje s bole\u0161\u0107u. Ako imate dijete s Battenovom bole\u0161\u0107u, ove Vam organizacije \u017eele dobrodo\u0161licu i nude odgovore na Va\u0161a pitanja.[\/vc_column_text][\/vc_column][vc_column width=”3\/4″ el_class=”connect_row”][vc_row_inner][vc_column_inner el_class=”connect-img” width=”1\/3″][mk_image src=”https:\/\/www.cln2family.com\/hr-hr\/wp-content\/uploads\/sites\/7\/2019\/02\/batten-logo.png” image_size=”full” target=”_blank” title=”BDSRA logo” el_class=”community_btn”][\/vc_column_inner][vc_column_inner el_class=”connect_each” width=”2\/3″][vc_cta h2=”Udruga obitelji oboljelih od Battenove bolesti (engl. Batten Disease Family Association, BDFA)” shape=”square” style=”flat” color=”white” add_button=”bottom” btn_title=”Pove\u017eite se danas” btn_style=”flat” btn_shape=”square” use_custom_fonts_h4=”true” btn_el_class=”community_btn absarrow7″ css=”.vc_custom_1535007999988{background-color: #ffffff !important;}” el_class=”connect_box” btn_link=”||”]Organizacija za obitelji, njegovatelje i zdravstvene radnike koji poma\u017eu djeci, mladima i odraslima koji \u017eive s Battenovom bole\u0161\u0107u. Cilj udruge BDFA je pru\u017eati podr\u0161ku, podizati svijest o bolesti te financirati istra\u017eivanja za pronalazak mogu\u0107ih na\u010dina lije\u010denja i, kona\u010dno, lijeka.[\/vc_cta][\/vc_column_inner][\/vc_row_inner][vc_row_inner][vc_column_inner el_class=”connect-img” width=”1\/3″][mk_image src=”https:\/\/www.cln2family.com\/hr-hr\/wp-content\/uploads\/sites\/7\/2019\/02\/zivot.png” image_size=”full” target=”_blank” title=”zivot logo” el_class=”community_btn_group”][\/vc_column_inner][vc_column_inner el_class=”connect_each” width=”2\/3″][vc_cta h2=”\u201c\u017divot\u201d- Udru\u017eenje gra\u0111ana za borbu protiv retkih bolesti kod dece” shape=”square” style=”flat” color=”white” add_button=”bottom” btn_title=”Pove\u017eite se danas” btn_style=”flat” btn_shape=”square” use_custom_fonts_h4=”true” btn_el_class=”community_btn_group absarrow7″ css=”.vc_custom_1551157280724{background-color: #ffffff !important;}” el_class=”connect_box” btn_link=”||”]Udru\u017eenje \u201c\u017divot\u201d je osnovano 2010.godine i od tada je veoma aktivno u podizanju svesti o problemima retkih bolesti , obezbe\u0111ivanju terapije i medicinske opreme kao i pobolj\u0161anju polo\u017eaja u dru\u0161tvu kako obolelih od retkih bolesti tako i njihovih porodica.\r\nNajve\u0107e dostignu\u0107e udru\u017eenja je inicijativa za usvajanje Zakona o prevenciji i dijagnostici geneti\u010dkih bolesti, geneti\u010dki uslovljenih anomalija i retkih bolesti tzv. ZOJIN ZAKON (koji je dobio ime po devoj\u010dici Zoji Mirosavljevi\u0107 koja je preminula od Batenove bolesti 2013.godine u svojoj 9-toj godini \u017eivota ).[\/vc_cta][\/vc_column_inner][\/vc_row_inner][\/vc_column][\/mk_page_section]","protected":false},"excerpt":{"rendered":"

[mk_page_section bg_image=”https:\/\/www.cln2family.com\/hr-hr\/wp-content\/uploads\/sites\/7\/2019\/02\/banner-bg-new.png” el_class=”main-Hbanner” sidebar=”sidebar-1″][vc_column width=”2\/3″ el_class=”inner-banner-left”][vc_single_image image=”21″ img_size=”full” el_class=”inner-banner_img”][mk_fancy_title tag_name=”h1″ color=”#ffffff” size=”38″ force_font_size=”true” font_weight=”bold” margin_bottom=”30″ font_family=”Source+Sans+Pro” font_type=”google”]Kako se mogu povezati s drugima?[\/mk_fancy_title][\/vc_column][vc_column width=”1\/3″ el_class=”header-callout”][\/vc_column][\/mk_page_section][mk_page_section el_class=”community_top” sidebar=”sidebar-1″][vc_column el_class=”community_heading”][vc_column_text] Pove\u017eite se sa sve ve\u0107om zajednicom za potporu oboljelim od CLN2 bolesti Niste sami\u00a0–\u00a0postoje mnogi resursi podr\u0161ke za obitelji i njegovatelje djece oboljele od bolesti CLN2. Skrb o […]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-27","page","type-page","status-publish","hentry"],"yoast_head":"\nHow can I connect with others? - CLN2 Family Croatia<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.cln2family.com\/hr-hr\/connecting-with-community\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"How can I connect with others? - CLN2 Family Croatia\" \/>\n<meta property=\"og:description\" content=\"[mk_page_section bg_image=”https:\/\/www.cln2family.com\/hr-hr\/wp-content\/uploads\/sites\/7\/2019\/02\/banner-bg-new.png” el_class=”main-Hbanner” sidebar=”sidebar-1″][vc_column width=”2\/3″ el_class=”inner-banner-left”][vc_single_image image=”21″ img_size=”full” el_class=”inner-banner_img”][mk_fancy_title tag_name=”h1″ color=”#ffffff” size=”38″ force_font_size=”true” font_weight=”bold” margin_bottom=”30″ font_family=”Source+Sans+Pro” font_type=”google”]Kako se mogu povezati s drugima?[\/mk_fancy_title][\/vc_column][vc_column width=”1\/3″ el_class=”header-callout”][\/vc_column][\/mk_page_section][mk_page_section el_class=”community_top” sidebar=”sidebar-1″][vc_column el_class=”community_heading”][vc_column_text] Pove\u017eite se sa sve ve\u0107om zajednicom za potporu oboljelim od CLN2 bolesti Niste sami\u00a0–\u00a0postoje mnogi resursi podr\u0161ke za obitelji i njegovatelje djece oboljele od bolesti CLN2. 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