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How can I connect with others?

Connect with a growing community of support for CLN2 disease

You are not alone—there are many support resources for families and caregivers of children with CLN2 disease. Caring for a child who has CLN2 disease can be emotionally and physically demanding. That’s why finding other parents and professionals to talk to can make the disease easier to manage. If you have a child with Batten disease, these organizations welcome you and want to answer your questions.

Batten Disease Support and Research Association (BDSRA)

The BDSRA is committed to raising funds for research, providing family support services, enhancing education, raising awareness, and advocating for legislative action. The Australian Chapter of the BDSRA was formed in 1995 by parents of children affected by Batten Disease.