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How can I connect with others?

Connect with a growing community of support for CLN2 disease

You are not alone — there are many support resources for families and caregivers of children with CLN2 disease. Caring for a child who has CLN2 disease can be emotionally and physically demanding. That’s why finding other parents and professionals to talk to can make the disease easier to manage. If you have a child with Batten disease, these organisations welcome you and want to answer your questions.

BDSRA logo
BDSRA logo

Batten Disease Family Association (BDFA)

An organisation for families, caregivers and healthcare professionals supporting children, young people and adults living with Batten disease. The BDFA aims to provide support, raise awareness and fund research into potential therapies and ultimately a cure.